In the diverse tapestry of childhood, I often hear three familiar words that resonate in public spaces: “Look at her!” Whether at the park, museum, grocery store, or mall, these words echo from the mouths of toddlers, children, teens, and sometimes, adults. They are directed at my beloved daughter, 4-year-old Lily, who was born with a rare skin condition that causes her skin to struggle, leading to rapid buildup and making her prone to infections. Her appearance often resembles a severe sunburn, a stark contrast to what many consider “normal.”
But I urge you to look deeper. Yes, look at Lily. Notice her radiant smile that lights up her face as she lets out an infectious giggle. Look into her beautiful eyes, a stunning shade of blue reminiscent of a clear ocean day. These eyes twinkle with joy, especially when she engages in playful antics with her little brother or dives into a game of hide and seek. However, they also reflect concern whenever she hears words like “doctor” or “hospital,” as she dreads the thought of needles and medical procedures.
Look at her as she dances to her favorite tunes, spinning in her dress and raising her arms to the beat of “Shake It Off.” Observe how she instinctively begins to sway with the rhythm, even when seated, and listen to her sweet voice as she attempts to keep up with the lyrics.
Look at her determination as she tackles new challenges—often physical feats that her peers may have mastered long ago. Witness the joy on her face as she slides down the park slide for the first time or climbs a set of steps independently, beaming with pride at her small yet significant achievements.
Look at her compassion, as she gently inquires about a sad child across the room or expresses concern for a woman who seems unwell at the grocery store. Her empathy has blossomed through her own health struggles and experiences in hospitals, shaping her into a caring individual.
Look at her excitement, whether at the playground, library, or even the grocery store. Lily embraces every opportunity to interact with others, play with new friends, and discover the world around her.
Look at the questioning expression she gives her parents when they explain to yet another curious onlooker that, no, she isn’t sunburned; this is simply how she was born. She often asks what’s wrong when she hears hurtful comments from others, like “weird” or “creepy,” directed at her.
Look at her resilience. It may sometimes come across as typical 4-year-old stubbornness, yet it is this tenacity that fills her parents with hope. We believe that her determination will empower her to stand up for herself and navigate life with confidence.
Understand that when you glance at my daughter, you may only see her unique skin—peeling and glistening from moisturizer. You’re not the first to look, and you certainly won’t be the last. However, I hope you recognize that there is so much more to Lily than what meets the eye.
The next time you encounter someone who appears different, whether it’s my daughter or another child, I encourage you to look a little closer. There is a rich story behind every unique individual, waiting to be discovered.
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In summary, let’s strive to see beyond our initial impressions and appreciate the whole person in front of us. Each individual has a story, and understanding that story enriches our lives and communities.
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