Parenting
I feel a pang in my chest whenever I notice someone staring at my youngest child, Mia. That sensation is painful. I can’t help but think of the negative assumptions people might be making about her, which shatters my heart into pieces, resulting in that physical ache. Sometimes, I want to shout, “She just has an extra chromosome!” But I hold back.
Instead, I scoop my little treasure into my arms, hug her closely, and softly whisper how much I adore her.
I really dislike it when people stare. It frustrates me. Yet, I find myself staring at Mia all the time. I can’t help it. My reasons are entirely different.
To begin with, Mia is breathtaking—absolutely stunning. From her unique almond-shaped eyes to her adorable little toes. Her hair, a lovely mix of brown and blonde, is a beautiful mess, and the tiny mole on her ring finger adds to her charm. Her squishy nose and chubby knees are delightful, and even the scars on her chest and abdomen are beautiful in my eyes. They tell the story of her journey.
This brings me to another reason I often find myself gazing at her. I’m in awe of her courage. At not even 4 years old, Mia has undergone heart surgery, bowel hernia surgery, faced neutropenia, and even had a scare with cancer. Recently, her tests revealed she has celiac disease. What a brave little warrior—no armor needed! How does she do it? She may be small, yet she is larger than life.
Look at her!
Seriously, it’s perfectly fine to look this time. I want you to see my daughter through my eyes. While it’s clear that Mia has Down syndrome, I hope you can also see how stunningly unique that makes her.
Can you feel her smile?
Do you see how she dances even without music playing?
Can you witness her relentless spirit, pushing forward despite life’s challenges?
Do you notice how her laughter fills the room, vibrant and full of life?
Do you see how she loves—completely and unreservedly?
Can you recognize how she truly lives, while many of us merely go through the motions?
If you see what I see, I’ll know by the way you gaze at Mia. I can always tell the difference, especially when I finally choose to look away from my beautiful daughter.
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In summary, it’s natural to stare when you’re captivated by something beautiful. My daughter Mia embodies strength, courage, and joy, and I hope those who gaze upon her recognize the incredible light she brings into the world.
