Updated: April 13, 2023
In the past few years, I can’t count the number of times I’ve responded with, “We’re okay,” to family, friends, neighbors, and co-workers who ask, “How are you managing?” With a son who has significant medical needs, a full-time job, and another young child in preschool, my default answer is quick and breezy: “We’re okay!” or “I’m doing well!” I often chuckle to myself after saying it.
But if I’m being honest, I haven’t truly felt “okay” in a long time. How could I?
How can I feel fine when I’m never prepared for when my child might require “routine” surgery? Those who have had a child on the operating table know that “routine” does nothing to ease the anxiety or the haunting thoughts of potential disasters that race through your mind.
How can I say I’m okay when my little one has undergone multiple surgeries, numerous procedures, and has spent a significant portion of his life in a hospital bed?
How can I claim to be fine when the unpredictability of his health keeps me up at night, praying alongside the rhythmic beeping of machines, caught between fear and hope for what the next day might bring?
Yet, despite all these challenges, I find that in many aspects, I truly am okay. Our lives, though often filled with worry, are also enriched with extraordinary love and laughter. We cherish every beautiful moment that comes our way, and I can’t imagine a family that understands better the joy each day brings. Each milestone is celebrated with overwhelming delight, and every hug from my child reminds me that these moments are what truly matter.
So, what do I want you to understand? While I might not be “fine” in the traditional sense, I am embracing the journey and finding moments of joy along the way.
If you’re navigating a similar path, you might find helpful resources at WomensHealth.gov for pregnancy and home insemination, or check out Make a Mom for insights on your fertility journey. Also, don’t miss this other blog post at Intracervical Insemination to keep yourself engaged and informed.
In summary, while life with a special needs child can be daunting, it is also filled with love and precious moments that make it all worthwhile.