Navigating life with a chronic illness can be incredibly challenging. I live with a condition that has no cure, and managing it requires constant vigilance. From checking my blood sugar multiple times a day to calculating my insulin doses and monitoring every carbohydrate I consume, it can be overwhelming.
The reality is, this condition is exhausting. When I’m not focused on my blood sugar levels, I’m often on hold with the insurance company, battling against exorbitant medical bills. If I’m not administering insulin to correct a high level, I’m worrying about how my morning workout will affect my health later in the day. And if I’m not questioning whether that slice of pizza was a good idea, I’m fielding questions from well-meaning friends about whether I should even be eating it.
Failing to maintain stable blood sugar levels can lead to severe long-term complications, including vision loss, amputations, kidney issues, and even heart disease. The weight of this knowledge is heavy; every decision I make—from my sleep schedule to my meals—can feel like a matter of life or death.
At first glance, you might not realize I have Type 1 diabetes. I blend in with other moms: messy bun, yoga pants, and coffee in hand. I juggle my kids’ schedules, handle the household chores, and manage my freelance writing career. My evenings are filled with the chaos of bedtime routines, and if I’m fortunate, I might finally collapse on the couch with my husband to catch some mindless TV.
When people discover I have diabetes—whether it’s from my insulin pump or me checking my blood sugar—I often hear the same responses. They share horror stories about relatives who suffered dire consequences from their health choices. I’m bombarded with questions about whether I can simply take pills instead of managing my condition. Others express their shock at the idea of needles or assume I must avoid sugar entirely. Some try to sell me dubious remedies or suggest alternative treatments. And then there are those who lean in and whisper, “How are you doing?” as if I’m a fragile vase that might shatter.
Managing blood sugar is like trying to keep a toddler calm when you take their favorite toy away—it’s an ongoing battle. Since my pancreas no longer produces insulin, I have to take on that responsibility myself, day in and day out.
Living with a chronic illness is an emotional rollercoaster filled with worry and frustration, but it has also instilled in me a sense of resilience and determination. Balancing my life has taken on a new meaning as I fight for my health every single day.
So, here’s what I don’t need: I don’t want to hear about the latest “miracle” health product or the family member who faced severe complications. Please don’t ask, “Are you okay?” as if I’m a walking disaster. These conversations can feel discouraging and only serve to remind me of my struggles.
Instead, let me share a story. When I was first diagnosed, a friend visited me in the hospital. I was frail, bruised, and in pain. Rather than offering empty platitudes, she simply sat at the end of my bed and rubbed my feet. Her message was powerful: I care, I’m here for you, and this is not about me.
If you know someone like me—a friend living with a chronic illness—consider offering support in meaningful ways. Surprise them with a coffee on a tough day, send a funny card that brightens their mood, or simply ask, “How can I make your day better?” And then, act on it.
Please don’t waste your energy feeling sorry for me. Stand beside me, support me in this fight, and maybe even send a coffee my way.
For more insights on navigating challenges in family life, check out this post on Modern Family Blog. If you’re looking for resources related to fertility, visit Make A Mom for quality at-home insemination kits, and for more information on pregnancy and home insemination, explore ASRM.
Summary
Living with a chronic illness like Type 1 diabetes can be exhausting and challenging, but it also fosters resilience and determination. Instead of pity, support is what I need—whether through small acts of kindness or simply being present. Let’s focus on fighting this battle together, without the weight of sorrow.
Leave a Reply