In the realm of childhood illnesses, we often hear about food allergies and the heart-wrenching challenges they pose for families. However, imagine a scenario where your child’s body doesn’t just react negatively to certain foods but outright rejects everything they attempt to consume. This is the harsh reality for one family, who is desperately seeking assistance for their little one.
Meet Noah, a 16-month-old boy diagnosed with two extremely rare and severe conditions: Mast Cell Activation Syndrome (MCAS) and Food Protein Induced Enterocolitis Syndrome (FPIES). A GoFundMe page set up for Noah shares that “these disorders have rendered it impossible for him to eat.” In simpler terms, his tiny body rejects everything he tries to ingest, leading to severe and sometimes life-threatening reactions. At nearly 17 months old, he relies solely on breast milk and occasionally munches on ice chips.
Noah’s medical situation has become “severe and urgent.” One of his doctors expressed to local news, “He doesn’t have many viable options unless we can figure this out soon.” With his body rejecting all forms of nutrition, Noah has not been gaining weight. The only sustenance keeping him alive—soy and dairy-free breast milk—is dwindling. Recently, he underwent surgery to have a PICC line for feeding inserted. “Given Noah has no safe foods and has had adverse reactions to feeding tubes, it was agreed that this is currently the best path forward,” notes his aunt, Sarah Lane.
Unfortunately, Noah’s growth has stalled, and his family is in dire need of support. What do they require? Donations of soy and dairy-free breast milk. They are reaching out to the community for any available help or insights from others who may have faced similar challenges.
If you have breast milk to donate, you can find more information on the Breastmilk for Noah Donor Page. Additionally, you can learn more about how to support Noah by visiting his dedicated page, Noah’s Army.
For more information about related topics, consider checking out this blog post on our website. And if you’re exploring options for at-home insemination, reputable retailers like Cryobaby offer excellent syringe kits. The CDC is also a fantastic resource for information on pregnancy and home insemination.
In summary, Noah is facing a life-threatening condition that makes it impossible for him to eat, and his family is urgently seeking help. They need donations of soy and dairy-free breast milk to support his survival. Any assistance or advice from the community could make a world of difference.