Parenting can be a whirlwind of challenges, especially when you’re navigating the complexities of Sensory Processing Disorder (SPD). My journey began eight years ago when my oldest son was diagnosed with SPD, leaving me feeling overwhelmed and hopeless in the chaos of family life. Thankfully, our story has taken a turn for the better. Today, my son has made remarkable strides and is thriving in his fifth-grade classroom, while my youngest son has outgrown his SPD symptoms. Throughout this journey, I’ve learned valuable lessons that I want to share with other families facing similar struggles.
1. Have Faith in Your Child
Every child needs at least one person who believes in them wholeheartedly. It can be tough to maintain that belief, especially in difficult times, but it’s crucial. Focus on their potential rather than limitations, and learn to tune out negative voices. Your faith can empower them to believe in themselves, leading to incredible growth.
2. Trust Yourself
Never underestimate your intuition. As a parent, you know your child better than anyone else. Even if professionals offer differing opinions, trust your instincts. Your insights are invaluable, so act on them quickly to ensure your child gets the support they need.
3. Build Your Support Network
The saying “it takes a village” holds true, especially for parents of children with SPD. Finding the right school and team can make a world of difference in your child’s progress. Seek out those who understand your unique challenges. You can also consult the STAR Institute’s Treatment Directory for local experts.
4. Persist Through Challenges
There will be days when progress seems elusive. Remember that regression is part of the journey. Celebrate the small victories and stay committed to the process. With time and effort, those little steps can lead to significant, lasting changes.
5. Educate Yourself
Knowledge truly is power when it comes to parenting a child with SPD. Dive into research about SPD and learn from other families’ experiences. Resources like STAR Institute’s Research Page and Library are great starting points, and connecting with other parents can provide valuable insights.
6. Prioritize Self-Care
Taking care of yourself is essential, even if it feels selfish at times. Caring for a child with special needs can be draining, and you need to recharge to be fully present for your family. Self-care isn’t a luxury; it’s a necessity.
7. Engage in Their World
One of the most impactful lessons I’ve learned is to immerse myself in my child’s activities. Whether it’s spinning or playing a game, joining them in their interests can foster trust and connection.
8. Understand Their Perspective
Seeing the world through your child’s eyes can transform your understanding of their behavior. It helps to realize that their reactions, like being a picky eater or resisting haircuts, stem from their sensory experiences. This perspective fosters patience and empathy.
9. Ignore Negative Opinions
You’ll encounter naysayers along the way, often from well-meaning friends and family. Remember, their intentions may be good, but they might not fully grasp the complexities of SPD. Stay focused on your path and seek guidance from trusted experts.
10. Cultivate Gratitude
Shift your focus from what’s lacking to what’s present. Gratitude can provide a positive outlook, helping you appreciate the journey. No matter the challenges, there is always something to be thankful for.
Bonus Insight: Hope is Real
When my son was first diagnosed, I was told he had one of the most severe cases. Fast forward to today, and he’s thriving in school and sports, with friends and a bright future. If we can navigate this path, so can you! Remember, you’re not alone on this journey.
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In summary, parenting through Sensory Processing Disorder can be challenging, but it is also filled with hope and potential for growth. By believing in yourself and your child, surrounding yourself with support, and focusing on education and self-care, you can navigate this journey with confidence.
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