My sister lost her battle with breast cancer due to a missed diagnosis from a screening. She was only 52 years old.
Beginning at 15, she experienced benign cysts in her breasts, which indicated a higher risk for breast cancer. Over the years, she underwent multiple surgeries to address these cysts, but her biopsies consistently returned negative for cancer. In her late 30s, her doctor advised her to begin mammogram screenings, which she diligently kept up with. Despite the ongoing cysts, all her mammograms remained negative.
Four years prior to her death, she underwent her annual screening, which included a breast ultrasound designed to identify changes and distinguish between benign cysts and potential tumors. The results were clear. The following year yielded the same outcome. However, two years before she passed, she noticed an unusual lump during her mammogram appointment and mentioned it to the technician. The screening again returned clean. Yet, she sensed something was amiss.
Months later, she developed a severe cough. During one particularly intense fit, she felt a sharp pain and learned she had fractured a rib. Intuitively, she connected this injury to the breast irregularity she had noticed. Seeking a second opinion, she returned for another mammogram at a different facility. This time, the diagnosis was devastating: stage-4 breast cancer that had metastasized to her ribs and eye. The slow-growing nature of her cancer meant it had likely been developing for years before its discovery. She succumbed to the illness two years later.
Her experience is not isolated—mammograms fail to detect about 20% of breast cancers. This sobering fact highlights the need for women to actively participate in their health care. Here are ways to advocate for your health:
Take Charge of Your Health
It’s vital to perform regular breast self-exams. Set a monthly reminder on your phone to check for abnormalities. This simple act could be lifesaving. Additionally, don’t forget to schedule regular clinical breast exams where professionals can assess your breast health. If you have dense breast tissue, discuss the option of a breast ultrasound with your doctor.
My commitment to women’s health advocacy stems not only from my sister’s tragic loss but also from my own experience with misleading medical advice. Uterine fibroids are prevalent in my family; my mother, sister, and I have all dealt with them. My mother underwent a total hysterectomy at age 31, the only option available at that time. When my sister reached the same age, she had a myomectomy, which removes fibroids while preserving the uterus. Living far away, I was unaware of the details of her procedure until later.
Two years later, during a routine pap smear, I encountered a new doctor who offered little empathy. After the examination, he bluntly informed me that I had fibroids and needed a hysterectomy. In shock, I left his office, and upon discussing it with my mother, I learned about my sister’s successful myomectomy. After doing my research, I sought a second opinion. This doctor confirmed the fibroids and presented me with alternatives: either leave them or undergo a myomectomy. I was relieved to learn that I was not limited to the hysterectomy option.
I eventually underwent a myomectomy at 31. Eight years later, when the fibroids returned, I consulted a compassionate doctor who suggested a partial hysterectomy, allowing me to keep my ovaries while removing my uterus. At nearly 40, I made the decision to proceed with the surgery. Through this journey, I learned the importance of advocating for my choices and trusting my instincts.
Prioritize Your Health Advocacy
Women must prioritize their health advocacy. Whether discussing mammograms or annual check-ups, it’s crucial to voice concerns about symptoms, even minor ones. Remember, doctors are human and can make errors. If you feel uncomfortable with your current physician, don’t hesitate to seek someone new. Finding a healthcare provider you trust may take time, but it’s essential for your well-being.
When faced with a diagnosis, arm yourself with knowledge. The Internet has both valuable and misleading information. Utilize reputable sources such as MedlinePlus for accurate health information, but remember that only a medical professional can provide a diagnosis.
Let’s prioritize our health for ourselves and our loved ones.
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Summary
This article reflects on the personal journey of a woman who lost her sister to breast cancer due to a missed diagnosis. It emphasizes the importance of advocating for one’s health through self-exams, seeking second opinions, and speaking up about concerns with healthcare providers. By sharing her experiences, the author encourages women to prioritize their health and make informed decisions.