It’s remarkable how a single day can reshape your entire existence — how one moment can change your trajectory forever. Over the past 33 years, I’ve experienced several such moments, but none were more pivotal than the day I received my scoliosis diagnosis.
You might wonder why this is significant. Scoliosis is relatively common, particularly among young boys and preteen girls. According to the American Association of Neurological Services, about 3% of the population is affected by this condition, with most cases being manageable or benign. Typically, spinal curves tend to resolve on their own over time.
However, my case was different. Instead of a minor curve or a temporary “growing pains” situation, I had multiple curvatures, including a substantial bend in my lower back—a staggering 60-degree lumbar curve. The options for correction were limited to either wearing a back brace or undergoing surgery, both of which were daunting prospects. Surgery, in particular, was a terrifying thought, while the back brace was equally disheartening. Ultimately, my mother and I opted for the less invasive choice; I was casted and fitted with a hard plastic brace extending from my underarms to my abdomen.
But that wasn’t the worst part. The brace came with three cumbersome Velcro straps that I had to use to put it on, take it off, and tighten it to apply pressure on my body. It was uncomfortable and painful, and instead of improvement, my condition worsened. Eventually, my curve exceeded 70 degrees, prompting my doctor to recommend an extensive 8-hour surgery to support and fuse my spine.
At just 15 years old, I underwent surgery that involved significant alterations to my spine, including the insertion of five screws and a long metal rod. Unlike the brace, this approach proved effective. Yet, even though my scoliosis was “treated” and my surgery deemed a success, the impact of scoliosis lingers. Eighteen years later, I still deal with pain caused by my surgery, a chronic condition that shows no signs of disappearing.
The residual effects of my spinal deformity are evident. Some days, I experience severe pain and swelling, making even simple tasks like walking, sitting, or standing a struggle. On particularly bad days, getting out of bed feels impossible. Moreover, my condition limits my physical capabilities—I can’t perform sit-ups or do flips, backbends, headstands, or handstands (though, truthfully, those were never my strong suits). One leg being shorter than the other has even caused me to stumble at times.
However, the most challenging aspect of living with scoliosis isn’t the physical pain; it’s the emotional toll it takes. Growing up with a visible deformity, I faced mockery and bullying during my formative years, leaving behind scars that are just as deep as my 16-inch surgical scar. I continue to grapple with feelings of inadequacy regarding my appearance, often avoiding eye contact and striving to blend into the background.
Despite these challenges, scoliosis is not an entirely negative experience. It’s not a terminal condition, and with appropriate care, it can be managed. Life with scoliosis can be difficult and painful, but it can also foster resilience and strength. My scoliosis, once perceived as a limitation, has transformed into a source of motivation. I’ve become an active adult, engaging in weightlifting, yoga, cycling, hiking, and running. Participating in 5ks, 10ks, and half marathons reminds me that I am not defined by my condition; rather, I am capable and strong.
On the pavement, I discovered inner power and confidence. Though life with scoliosis remains a challenge, I push forward. I am more than my diagnosis. You are as well.
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Summary
Living with scoliosis presents numerous challenges, both physical and emotional. Despite the pain and limitations, it can also lead to a life of resilience and strength. Many individuals with scoliosis, like myself, find ways to adapt and thrive, proving that we are more than our diagnoses.