My Son’s Journey: A Metamorphosis

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After facing numerous challenges and uncertainties, our seven-year-old son, Ethan, has undergone a remarkable transformation. He is genuinely happy and flourishing, seemingly overnight. During his first-grade year, he has excelled academically, achieved all A’s, developed strong reading skills, made new friends, and passionately committed to both karate and soccer, even though he competes with more athletically inclined peers.

When Ethan was just two years old and we were living in Georgia, we noticed he lagged in speech, physical, and emotional development. In response, we initiated therapy. Shortly after the arrival of our second son, Noah, Ethan was expelled from his first preschool for biting and severe temper outbursts. The staff remarked they had “never encountered a child quite like Ethan.”

By age four, while residing in Florida, he was dismissed from another school due to behavioral issues and poor impulse control. Parents speculated, “Is he on the spectrum? What’s wrong with him?” Others were less sympathetic, labeling him a bully and advocating for a school meant for troubled kids.

We sought help from a child psychologist to address his behavior, and around that time, he was diagnosed with Cyclical Vomiting Syndrome, an anxiety-related disorder that triggered bouts of vomiting in stressful situations, including family trips and holidays. We decided to give him a year off from school and hold him back a grade. At five, while attending a Montessori school, the director identified that he had Sensory Processing Disorder, a condition that affected his brain’s ability to process the overwhelming stimuli around him. We added occupational therapy to his regimen, along with speech and behavioral therapy. Despite our efforts, Ethan’s frustration and impulse control issues led to frequent meltdowns at school, at home, and in public.

One fateful day in May, fueled by his emotions, he knocked over a bookshelf and accidentally hit his teacher. He was crushed when he learned he couldn’t go on the field trip. Although he faced appropriate consequences, he was genuinely remorseful and overwhelmed, admitting he sometimes felt powerless against “the bad Ethan.” Throughout this ordeal, the school, along with our family and friends, showered him with unwavering love and support.

As we prepared to relocate from Florida to Texas, two private schools acknowledged Ethan’s intelligence but ultimately decided they could not accommodate his needs. This was another heart-wrenching setback as we hoped for a fresh beginning.

We purchased a home in a highly-rated public school district, closing just a day before registration. Seeking the right strategies for Ethan, we invested in an extensive psychological evaluation and a genetic test to explore suitable ADHD medication to help with impulse control. Surprisingly, we ended up not needing any of those interventions.

When Ethan commenced first grade, something remarkable clicked for him. He achieved an A in conduct almost every day, except for two days when he was “excessively talking” to a new friend—something we couldn’t help but take pride in. After nine weeks, he received recognition for meeting his reading goals, completing homework consistently, and displaying exemplary behavior. He went from struggling with reading over the summer to achieving a level D. He must reach level J to progress to second grade, but he has ambitiously set his sights higher.

One evening, when he faced challenges with the books assigned, he threw them down in frustration, momentarily upset. But after a brief cry, he picked them up and declared, “If I can’t be the best reader in my class, at least I’ll be the best in my reading group!”

Ethan’s journey is far from over. He remains quite emotional, and while he’s managing his frustrations, anxiety, and disappointments more effectively, he has had significant breakdowns, including during karate and at school, when we arrived just a minute after the bell. Although his vocabulary is impressive and he has many ideas to share, his speech articulation remains at a three-year-old level, with only about 30% intelligibility. There is still much work ahead.

I share our story openly because I see other children like Ethan and parents who face similar struggles. Some kids, like our five-year-old Noah, seem ready to soar from the moment they arrive, while others remain ensconced in their cocoons, enduring dark times. We wait, tirelessly supporting them through therapy, research, and nurturing love. Ultimately, one day, they emerge as butterflies.

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Summary

Ethan’s journey from a challenging childhood to thriving in first grade highlights the transformative power of love, therapy, and support. Despite ongoing hurdles, his progress serves as a reminder that every child’s path to success can be unique, akin to butterflies emerging from their cocoons.

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