From Special Needs Child to Special Needs Parent: A Journey of Understanding

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As a mother with experience, I understand the significance of a simple paper grocery bag filled with neatly organized schoolwork. It represents years of sorting, reminiscing, reflecting, and ultimately confronting the reality of passing it on to the next generation. While I haven’t reached the point of handing such a bag to my children, I have received one. Recently, during a visit with my parents, my mother once again presented me with a collection of childhood keepsakes.

I’m familiar with these mementos from my past, though the specifics often elude me. I recall high school notebooks and a copy of a classic book that made me want to yawn, along with a notebook that had belonged to my sister. In it, I discovered a phone number and the name “Emma” written in her hand, with my own note beneath it claiming, “is a fool.”

This latest bag was distinctive. It started with early writings that were nearly impossible to decipher. There were numerous letter reversals and misspellings that required me to sound them out, hoping clarity would emerge through speech. Yet, a narrative began to unfold. Included were notes from teacher conferences and test scores reflecting both cognitive strengths and struggles with written expression. A doctor’s card inscribed with “learning disability” was also tucked inside.

As I sifted through, I found projects showcasing my best attempts at writing, often transformed into legible statements by my mother’s careful hand. Among the treasures was a five-page report about Vermont, adorned with stenciled letters and pictures from old magazines, featuring sentences that were finally coherent and correctly spelled. One line particularly struck me: “Vermont is a place where horseback riding is very common, which is why I want to live there!”

By the end, I felt a swell of emotion—not for Vermont itself, but for the remarkable effort my mother invested in my education. I’ve always known my struggles with dyslexia, excelling in standardized tests while grappling with spelling and letter reversals. Yet, this tangible evidence of my journey was profound.

As a parent of children navigating their own learning differences, I empathize deeply with their frustrations. I understand the challenge of helping them discern between “b” and “d,” and the constant questioning of whether my support is beneficial. I’ve witnessed their struggles in school and sought assistance from educators. Currently, two of my children have Individualized Education Programs (IEPs), and despite receiving considerable support, the journey remains demanding.

My admiration for my mother has grown immensely. She advocated for me without the resources available today, ensuring I received the help I needed to succeed academically. Thanks to her efforts, I graduated from New York University and have forged a career as a writer. Now, I find myself guiding my children through their own educational ups and downs, advocating for them just as my mother did for me. I even aspire to create a neatly organized collection of their works, similar to the grocery bag I once received.

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In summary, the journey from being a special needs child to becoming a special needs parent has deepened my appreciation for my mother’s dedication. It’s a testament to the power of advocacy and love in navigating the complexities of learning differences.

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