What I Discovered When I Donated Part of My Liver to My Closest Friend

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In recent months, I have been reflecting deeply on the nature of fear and how it shapes our lives. I often find myself recalling moments from my childhood when fear felt tangible. One vivid memory is from when I was twelve, staring into a small tunnel beneath my driveway. A group of neighborhood boys dared me to crawl through it. Despite my desire to impress them, I was overwhelmed by fear and retreated without entering. This experience is just one of many that highlight how fear has influenced my choices from adolescence into adulthood.

Then came motherhood. The term “fear” hardly encompasses the emotions I felt as a parent. The innocence of my childhood fears has been replaced by the intense concern over my children’s safety and well-being. I now spend countless nights assuring my son that there are no monsters lurking in his room, fretting over school drop-offs, and worrying about their health or potential dangers lurking in the world. The weight of responsibilities—like bills, marital issues, and the challenges of parenting children with special needs—often leaves me feeling as if I’m again facing that dark tunnel.

The pivotal moment came when my best friend, Emily, was diagnosed with a rare bile duct disease known as Primary Sclerosing Cholangitis (PSC) in June 2014. Just two months later, she received the devastating diagnosis of bile duct cancer, a rare and aggressive form of cancer for someone her age. Our lives quickly became entwined with hospital visits and the emotional toll of her suffering. Emily bravely traveled across the country to seek the best treatment options, engaging in chemotherapy and radiation, a true venture into the depths of uncertainty.

As the situation escalated, we learned that Emily’s only hope for long-term survival was a liver transplant. With the shortage of deceased donors, a living donor became her best option. I found myself grappling with my own fears as I prepared to offer a portion of my liver.

Before leaving for the transplant surgery in Minnesota, I shared a light-hearted moment with my 4-year-old son. He expressed his desire to accompany me, thinking we were going to a place called “soda town.” Our exchanges were filled with innocence, yet they were overshadowed by the enormity of the decision I was about to make.

The transplant was initially scheduled for December 15, 2014. However, the day before the procedure, we received shattered news: the cancer had spread, and the transplant could no longer proceed. Watching Emily’s mother receive that news was heart-wrenching, and seeing Emily’s reaction was even more difficult as she faced the loss of her chance for survival. It was in that moment of despair that I felt frozen, my own preparations suddenly rendered meaningless.

My son, whom I affectionately call “Superhero,” had been diagnosed with Autism Spectrum Disorder, which added another layer of complexity to my life. His struggles, filled with emotional turbulence, made me realize that fear manifests in many forms. I had anticipated being a role model for him, showing him that facing fear is possible, but suddenly felt that opportunity slipping away.

Then, in a miraculous turn of events, the decision for the liver transplant was reversed just days later, based on new pathology reports. We were given 18 hours’ notice to prepare for the surgery. That night in the hospital, we shared moments of laughter and connection amidst the emotional turmoil. I lay awake reflecting on my own journey through fear and how it had shaped my life.

On December 19, 2014, I donated 55% of my liver to Emily, driven by love and a renewed perspective on fear. My experience taught me that fear is akin to the monsters in my son’s room—nonexistent when illuminated by the light of understanding and courage.

Today, my approach to fear has transformed. I no longer feel anxious about being late to school or my son experiencing emotional outbursts. I embrace the unpredictability of parenting and trust in my ability to navigate challenges. A poignant moment occurred when I returned home after my surgery. My young son rushed to me, laying his head gently on my healing scar, showing me that love transcends fear.

Through this journey, I hope to instill in my children the lesson that fear can be confronted and overcome. When they encounter their own dark moments, I want them to remember that they possess the strength to face them head-on.

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In summary, my experience of donating part of my liver has reshaped my understanding of fear. It has emphasized the importance of love and strength in overcoming life’s challenges.

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