Tag: Sanfilippo Syndrome
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Words Too Difficult to Share with My Terminally Ill Child
Get Pregnant Fast As a parent, I always imagined conversations with my daughter, Emma, revolving around typical teenage topics—fashion, friends, and the ups and downs of growing up. I aspired to be the kind of mom who was approachable and open-minded, someone you’d want to confide in. I envisioned encouraging her to embrace her individuality…
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Family Receives a Life-Changing Clinical Trial, Now Focused on Supporting Other Children
Get Pregnant Fast The journey of the Rivera family has been one filled with challenges as they confront Sanfilippo Syndrome, often referred to as Childhood Alzheimer’s. After securing a groundbreaking clinical trial for their beloved daughter, Mia, the family is now dedicated to ensuring that other children facing similar battles can also access this life-altering…