Tag: rare diseases
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Raising Awareness About Hunter Syndrome: A Mother’s Journey
Get Pregnant Fast I invite you to join me on a thought-provoking journey. If you are a parent, relative, friend, teacher, healthcare professional, or anyone who cares, this journey is for you. It’s a difficult path that many families must navigate. Picture this: You are handed a beautiful newborn—perhaps your child, a niece, or a…
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On Hold: Navigating Health Care for a Child with a Chronic Condition
Get Pregnant Fast As a parent of a child with a chronic illness, I can tell you that dealing with medical billing can feel like a full-time job. Recently, I’ve faced a series of frustrating billing issues with my son’s specialty pharmacy—problems that are all too familiar to those in our situation. Endless phone calls,…