Tag: hemophilia
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My Son’s Hidden Struggles: Understanding the Pain Beyond the Surface
Parenting Get Pregnant Fast It’s easy to overlook the struggles that aren’t immediately visible, especially when it comes to health issues. My two children, for instance, battle hemophilia, a rare genetic disorder that prevents their blood from clotting properly, leading to severe internal bleeding and joint complications. My youngest, Ethan, faced substantial challenges due to…
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Coming to Grips with My Son’s Genetic Condition
Get Pregnant Fast Navigating the journey of parenting a child with a unique genetic condition is a delicate dance between love and fear. These emotions are intertwined in a parent’s heart, creating a complex tapestry of hope mingled with anxiety. Each day begins with the hope for relief from pain or illness, while the shadow…
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Dear ABC: An Apology is Due to the Bleeding Disorders Community
Get Pregnant Fast When I share that my son has hemophilia, I often encounter a series of predictable questions. Is he descended from a Russian Czar? No. Will he outgrow it? Absolutely not. Can you bubble wrap him? It’s tempting, but no! Surprisingly, no one has ever asked me if hemophilia is a condition resulting…